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Louisiana’s Young Breast Cancer Survivor Network

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Genetics

Women who get breast cancer young are more likely to have genetic factors they should consider. Here are resources to help you learn what role genetics may have played in your cancer, what it might mean for your family's risk (including the men) and even the possible role it may play in your treatment.

National Resources

Bright Pink

Bright Pink offers education and support to young women at high risk of developing breast and ovarian cancer. Young women can receive one-on-one peer support through the PinkPal program and connect with others through the online peer forum. Questions can be submitted to genetic counselors through the website, and the organization offers expert-led teleconferences and archives from past teleconferences.

http://www.brightpink.org/

CDC BodyTalk

BodyTalk helps young women assess their risk for the BRCA1 and BRCA2 genetic mutations, and provides them with information to discuss with their doctors.

http://www.appdropp.com/ios/cdc-bodytalk/630626940

Family Notification Service

The Family Notification Service helps registered users notify their at-risk immediate and extended family members of their BRCA test results. They can help you craft letters to make sharing the news easier.

http://vm-apps1.profitnet.libertastechnologies.net/CYG_FamilyNotificationService/

FORCE

FORCE provides information on how genetics impact cancer risk, and links cancer survivors and their families to clinical trials. They also offer support resources such as local support groups, message boards and two help lines; one for peer support from volunteers who have gone through the process of genetic testing, and one which links cancer survivors to board-certified genetic counselors who can answer general questions. FORCE offers two local support groups in Alabama, which is a part of the YBCS network.

http://www.facingourrisk.org/get-support/call-our-helpline.php

Genetics Home Reference

Genetics Home Reference offers a scientific look at the role genetics play in breast cancer and other health conditions.

https://ghr.nlm.nih.gov/condition/breast-cancer

Know: BRCA

Know: BRCA offers an online assessment to help young women identify their risk of having a BRCA gene mutation. The assessment is HIPAA compliant and can be integrated into Electronic Medical Records. There is also a list of resources to help young women and their providers to work together to decide next steps, possibly including genetic counseling and testing, screening, and risk reduction.

https://www.knowbrca.org/

National Society of Genetic Counselors

This directory has been developed to assist physicians, patients and genetic counselors in accessing genetic counseling services. The Find a Genetic Counselor directory offers access to over 3,300 genetic counselors (US and Canada). Check with your insurance company to verify coverage of genetic counseling, testing and authorized providers.

https://www.nsgc.org/page/find-a-genetic-counselor

Talk to Someone: Triple Negative Breast Cancer

“Talk to Someone: Triple Negative Breast Cancer” is an online and mobile app in which TNBC patients engage in an interactive conversation with Linda, a virtual TNBC survivor. Users lead the conversation by posing their questions about TNBC, chemotherapy, life during treatment, and survivorship to Linda. The objectives of the conversation are for patients to better understand their diagnosis, better understand advantages of chemotherapy, and to know what to expect from treatment, in order to raise motivation to pursue chemotherapy.

https://www.cdc.gov/cancer/breast/triple-negative.htm

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