National Organizations

Numerous national organizations provide support in all kinds of ways. Some you've heard of, such as the American Cancer Society, while others you may not be so familiar with, such as ReThink and Journey Forward. Look through them all to see just how much help is out there.

National Resources


Association of Cancer Online Resources

Association of Cancer Online Resources (ACOR) provides free information and support to those affected by cancer through its cancer-related online email lists and web-based resources. Many of the online cancer communities are cancer specific, such as quality of life issues, sexuality, fertility, and depression.

http://www.acor.org/

Breast Cancer Reconstruction Choices

Breast Cancer Reconstruction Choices (BCRC) is an online resource which aims to educate, empower, and advocate breast cancer patients by providing a range of information on the various surgery choices, as well as information on insurance, assisting women to seek the most suitable choice for them. It also features an online blog where women can share their stories and can feel comfortable to ask one another for advice and suggestions during their journey.

http://www.breastcancerreconstructionchoices.com/index.html

Breast Investigators

Breast Investigators is a social networking website that lists support resources, breast cancer information, and news. The website also features information, events, and blogs for special interest groups, including advocates and those affected by hereditary breast cancer. Members can create their own profiles, upload videos, blog, and discuss topics in monitored forums and more.

http://www.breastinvestigators.com/

Breastcancer.org

Breastcancer.org is a nonprofit organization that provides information on all aspects of breast health. The website also features discussion boards, blogs, chat rooms, transcript archives of online conferences and more.

http://www.breastcancer.org/

Cancer Support Community

Cancer Support Community (CSC) is an international organization that provides support and education to those affected by cancer. CSC offers online support groups, discussion boards, and a toll-free cancer support helpline. Members can also create their own personal webpages.

http://www.cancersupportcommunity.org/

Cancer.Net

The American Society of Clinical Oncology’s patient information website, Cancer.Net, provides educational resources and oncologist-approved information on more than 125 types of cancer. Information on genetics, clinical trials, coping, sexual and reproductive health, survivorship, advocacy, cancer in young adults and more. The website features a number of publications and resources, and podcasts, videos, virtual lectures, and medical illustrations.

http://www.cancer.net/

CancerConnect

CancerConnect provides members with opportunities to participate in discussions, share information, and provide support to others affected by cancer. The website offers information on a number of topics, including managing treatment side effects, spiritual and emotional well-being, and reproductive and sexual health. Informational videos, daily cancer news, online cancer resources, and a state-by-state directory of financial resources can also be accessed through the website.

http://cancerconnect.com/

Celgene Patient Support

If you are on a Celgene drug for your treatment, this portal can help you with information about co-pay assistance and healthcare professionals navigate the challenges of reimbursement. The website features insurance coverage and reimbursement information, tools and resources, and financial resources, including the Celgene free medication program. Celgene Patient Support Specialists can connect patients with organizations that may provide financial assistance for co-pay assistance.

http://www.celgenepatientsupport.com/

Centers for Disease Control and Prevention

The Centers for Disease Control and Prevention's (CDC) website provides reliable health information on a number of health topics, including cancer prevention and control. Survivorship stories, breast cancer publications, cancer resources, and family health history information are available online.

http://www.cdc.gov/

Chemocare.com

Chemocare.com provides information on chemotherapy, chemotherapy drugs, managing side effects and more. Survivor stories, resources, and information on menopause, sexuality, and cognitive issues are available online.

http://www.chemocare.com/

Foundation for Women's Cancer

The Foundation for Women’s Cancer funds research and training to provide education and increase public awareness of cancer prevention and early detection. Breast cancer information is available online and a variety of topics such as fertility, sexuality, and genetics. The information hotline provides doctor referrals, educational information, and resources.

http://www.foundationforwomenscancer.org/breast-cancer/

Global Resource for Advancing Cancer Education (GRACE)

Global Resource for Advancing Cancer Education (GRACE) provides expert information on current cancer treatments and symptom management. The website features general cancer information, webinars on cancer treatment and symptom management, and an opportunity to participate in moderated discussion forums.

http://cancergrace.org/

Healthy Survivorship

Healthy Survivorship’s mission is to provide tools and resources to empower cancer survivors to live healthier lives. The site includes a personalized healthy survivorship assessment tool to help survivors self-assess and recommendations to help them become healthier survivors.

http://www.healthysurvivorship.org/

iGo Pink The Breast Cancer Charities of America

The Breast Cancer Charities of America exists to eliminate breast cancer as a life-threatening illness. They bring together organizations representing all health and social service disciplines in the commitment to establish new and unprecedented levels of effectiveness in research, education, advocacy and support. BCCA is the only non-profit bringing the ‘integrated cancer care’ message to women of America.

http://www.thebreastcancercharities.org/

Journey Forward

Journey Forward is a program that promotes the use of Survivorship Care Plans, which includes information regarding late- and long-term effects of cancer treatment, a list of support resources, and more. The Survivorship Care Plan Builder is a free, easy-to-use software program that can assist oncology professionals in quickly creating customized care plans and can be accessed through Journey Forward’s website. Resources for patients, professionals, and advocacy groups are also listed on the website.

http://www.journeyforward.org/

Lacuna Loft

Lacuna Loft is a 501(c)3 nonprofit that encourages, empowers, and connects young adult cancer survivors and caregivers around the world, 24/7. Lacuna Loft provides online wellness support programs and resources, lifestyle encouragement, and peer support community that young adults need to overcome their challenging health and life circumstances, and thrive.

https://lacunaloft.org/

LIVESTRONG

LIVESTRONG is an organization that provides support services, programs, and education to empower those affected by cancer. The organization offers navigation services, which provides free confidential support through education, referrals, and counseling to anyone affected by cancer. The program assists with fertility information, financial, insurance, and work concerns, counseling, local resources, and treatment concerns.

http://www.livestrong.org/

National Breast Cancer Foundation, Inc

The National Breast Cancer Foundation (NBCF) provides breast cancer information, educational videos, diagnostic breast cancer services, and support services. Members of the online support community, MyNBCF, can participate in discussion forums, blogs, and chats.

http://www.nationalbreastcancer.org/

National Cancer Institute (NCI)

The National Cancer Institute (NCI) offers educational cancer information, resources, and support. Information specialists are available to answer cancer-related questions and online chat support is available through the website. NCI publications can be downloaded or ordered free of charge.

https://www.cancer.gov/

National Coalition for Cancer Survivorship

The National Coalition for Cancer Survivorship (NCCS) was created by and for cancer survivors and advocates for quality cancer care. NCCS provides cancer information, free publications, informative telephone workshops, advocacy tools as well as training, resources, and a free audio program called the Cancer Survival Toolbox. There are also survivor stories discussing intimacy, sexuality, and the emotional aspects of cancer.

http://www.canceradvocacy.org/

National Comprehensive Cancer Network

The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 27 of the world’s leading cancer centers, is dedicated to improving the quality, efficiency, and effectiveness of care for patients with cancer. Through the leadership and expertise of clinical professionals at NCCN Member Institutions, NCCN develops resources that present valuable information to the numerous stakeholders in the health care delivery system.

https://www.nccn.org/patients/

Patient Resource LLC

Patient Resource, LLC provides free comprehensive cancer resource guides. The website features information by cancer type, survivorship stories, blogs, financial and advocacy resources, and more.

http://www.patientresource.com/

Pink Ribbon Breast Cancer Survivors Network

The Pink Ribbon Survivors Network is a nonprofit organization committed to serving the needs of breast cancer survivors and providing education tools for cancer professionals and primary care providers. The Network offers a comprehensive Breast Cancer Resource Directory and a Curriculum for Recovery Library, which is comprised of selected articles, readings, and websites to promote, help and support breast cancer survival.

http://www.pinkribbonsurvivorsnetwork.org/survivors-friends-family

Rethink

Rethink is a Canadian breast cancer charity that offers support programs, education, and resources for young women with breast cancer. The website features breast cancer resources and information on a number of topics, including body image, sexuality, genetic breast cancer, and fertility. A guide to alleviating the side effects of chemotherapy can be downloaded through the website.

http://rethinkbreastcancer.com/

SHARE: Self-help for Women with Breast or Ovarian Cancer

SHARE: Self-help for Women with Breast or Ovarian Cancer aims to create and maintain a supportive network and community of women affected by breast or ovarian cancer. All services are free and include telephone support, support groups, educational programs, and advocacy activities. SHARE offers support for survivors and caregivers and hosts educational programs either in-person or by webinar. SHARE’s Calendar of Programs is created quarterly and the next calendar will include a webinar on having children after cancer.

https://www.sharecancersupport.org/

Stupid Cancer

Stupid Cancer's mission is to empower those affected by young adult cancer by building community, improving quality of life, and providing meaningful survivorship. The foundation provides age-appropriate resources and support services nationwide through local events, social media, educational workshops, conferences, and a weekly live talk radio webcast called The Stupid Cancer Show. The website lists young adult organizations, and the forums discuss topics such as education and careers, health and wellness, and relationships.

http://stupidcancer.org/

Susan G. Komen For the Cure

Susan G. Komen for the Cure’s national website provides access to comprehensive breast cancer information, interactive educational tools, webinars, message boards, and advocacy news and opportunities. The breast cancer helpline provides free professional support services to anyone with questions or concerns about breast cancer, including access to resources for financial issues, legal assistance, and emotional support.

http://ww5.komen.org/

Tigerlily Foundation

The mission of Tigerlily Foundation is to educate, advocate for, empower and provide hands-on services and support to young women (15-40), before, during and after breast cancer. They seek to educate and empower women of all backgrounds, including those at heightened risk, those facing health disparities, and those with less access to care.

http://tigerlilyfoundation.org/

Triage Cancer

Triage Cancer works to address cancer-related health disparities through the delivery of cancer survivorship education, particularly information related to accessing care. They connect people with relevant, practical, and personal information on cancer survivorship issues, such as access to healthcare, treatment options, psychosocial care, survivorship care planning, and the practical issues that arise as a result of a cancer diagnosis.

http://www.triagecancer.org

Ulman Cancer Fund for Young Adults

The mission of the Ulman Cancer fund for Young Adults is to change lives by creating a community of support for young adults, and their loved ones, impacted by cancer. They offer one-to-one support, support group events, and academic scholarships for young survivors.

http://ulmanfund.org/

Louisiana's Young Breast Cancer Survivor Network

Young women with breast cancer face unique issues. And in the South, there are more young women overall facing breast cancer. In Louisiana, young African-American women are significantly more likely to suffer from breast cancer.

That is why SurviveDAT is here. Part of the Gulf States Young Breast Cancer Survivor Network, SurviveDAT's mission is to help improve the quality of life for young breast cancer survivors, as well as their family and friends, by providing continuing resources and support.

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